The effects of the radiotherapy are now really kicking in for Dave. In respect of the inside of his throat.... now starting to be really sore and not being able to swallow his meds or talk!!
We now have to administer his medications, for reflux, nausea and pain relief via a syringe through the PEG. I did have to crush one of his meds and then put in water but now have a dissolvable version. The others just dissolve or they are liquids.
Meds taking:
For the lack of Thyroid
- Thyroxine 100 micro grams each day except for Tuesday & Friday he takes 150 micrograms.
For his reflux
- Omeprazole 40mg day. Though now have had to change this to Losec (20mg x 2 tablets), as we need to be able to dissolve the tablets, and Omeprazole generic brand we had did not dissolve.
- Zantac 300mg 1 a day. Though we have changed this to Zantac effervescent tablets 150mg - twice a day.
For the Nausea
- Ondanestron (Zofran Zydis) wafer 8mg twice a day when required.
- Nausicalm (cyclizine) 50mg 1 tablet three times a day when required.
- Pramin (Metoclopramide HCL) 10mg, 1 tablet three times a day when required.
- now just using Maxolon ampoules which can be put through the PEG. Maxolon seems to be more beneficial than the three above!
For the Pain
- Was just taking Panadol liquid but have now upped it to Ordine 5 (morphine), 5mg/ml... 1ml every two hours. Though Dave started to react badly to this so now have changed it to Fentanyl patches! Apply one patch to the skin evert 72 hrs (3 days).
I feel like I have taken a crash course in medications and administering them!! Maybe I should become a Nurse!!! Also think we could open our own Pharmacy now too!!! :-)
I owe a HUGE thanks to John at the Pokolbin Village Pharmacy for all his support, help, advice and chats and my phone calls in requesting and sourcing everything for Dave. Also suggesting other options too. Thanks so much John :-)
Earlier in the week we had a bit of an issue with the scheduling of Dave's appointments. They had Dave scheduled to catch up with the specialist on Wednesday at 11.00am, however by 11.30am we hadn't been called so I went and checked with the receptionist what the delay was... she then advised me that Dave didn't have a scheduled appointment that day, in fact it was scheduled for the next day, being Thursday!!!! That the specialist never meets on a Wednesday!! Well it would have been nice of them to update us prior to this happening!!! As this had been scheduled since we started!!! As you can imagine I went right off!!
I requested a meeting with the ward manager so I could express my upmost concern. I had to express our concern as Dave can't talk much at the moment! As this wasn't the first time this had happened!! The previous week it was the Nurses scheduled appointment that didn't happen! One of the main reasons I/we were so very annoyed was because every minute away from home means that Dave is not getting his fluids/food via the PEG/pump and getting dehydrated! So on Wednesday he had four hours without fluids!!!! He is able to sip a little from his water bottle but this is all. The ward manager obviously apologised profusely and said he would raise this at their regular meetings to ensure it wouldn't happen again. I certainly hope it doesn't happen again for Dave or anyone else. As this whole process/experience is stressful enough without having to deal with issues of scheduled appointments not happening.
Wednesday was a sad day, also, because Cam returned to NZ. It was so nice having him around for the past two weeks... didn't want him to leave! Cam's hoping to return for Christmas, which will be really lovely. By then Dave will be much better and will be able to take Cam out for a round or two of golf!
Later Wednesday night I took Dave for a little walk to get some fresh air and stretch out but afterwards I needed to go for a power walk to let off some steam!!! Thanks Sherry for joining me and listening!! We got home just in time before a major thunderstorm hit us!!
Thursday was a better day.... we had the said scheduled specialist appointment, Dave's treatment and a Nurses appointment... well we were in and out within an hour, like clockwork!!! My chat the day before must have meant something. Also it was a strange feeling as there were hardly any patients around, normally the reception waiting room is buzzing with people! Especially on Dr appointment days!
Dave also requested that his radiation appointment be re-scheduled for the Friday... as he wanted to be able to purchase Bruce Springsteen concert tickets at midday that day on-line!!! The girls on the machines were very accommodating :-) Fingers crossed Dave's able to purchase them!! As this will be a great concert to look forward to early next year.
Dave also requested that his radiation appointment be re-scheduled for the Friday... as he wanted to be able to purchase Bruce Springsteen concert tickets at midday that day on-line!!! The girls on the machines were very accommodating :-) Fingers crossed Dave's able to purchase them!! As this will be a great concert to look forward to early next year.
Dave's nausea seems to be subsiding a lot now too, which is a great feeling for him. All the fluids constantly being pumped through him is flushing the chemo out.
Ooops I spoke too soon!!!! Friday morning bam the nausea hit him... in fact he spent most of the morning vomiting and dry reaching!!! Awful!! We think he might have had a reaction to the Ordine - Morphine, as he was ok up until taking this. I phoned the hospital and spoke to the Nurse as I wanted Dave to see the specialist again. I was concerned that he hadn't gotten any fluids into him all morning! We got a specialist appointment at 2.30pm which was great. Took him straight through to the triage area where he could lay down. They took full bloods, and obs... all were great thankfully. As he was dehydrated they hooked him up to an IV drip and gave him maxolon (nausea med) via the drip too. The Maxalon seemed to help a lot as did hydrating him. The Specialist also gave us new scripts for Fentanyl patches and Maxolon ampoules. Thanks to the great advice from our pharmacist.
Friday night was a little better, but only very slowly administering fluid via the PEG.
Oh and yes Dave managed to purchase our Bruce Springsteen tickets too!!!! So excited to be seeing 'the Boss' live!!
Saturday Dave was feeling better again, but still only getting slow fluids in via the PEG. Which worries me as I don't think he's getting enough throughout the day/night!!! But who am I to argue with the patient!!! As Dave says he can only administer what he can handle. I realise this, but still worries me that he's not getting enough.
As I was awake at the crack of dawn Saturday morning I decided I would join my walking group for a walk as it was such a stunning morning. I made sure that Dave was comfortable, administered his drugs and topped up his feeding bag. Dave all settled and back off to sleep... off I went. It was really lovely to get out in the fresh air for a power walk and catch up with everyone... great medicine for me!! Then after coffee I returned to my gorgeous hubby, checked all was ok then I got stuck into cleaning our home top to bottom!!! Must be Spring!! Great way to exercise!!! And such a lovely feeling to sit back on Saturday night knowing its all done, that it smells nice and clean. As it was such a great day I had all the windows and doors open to air the house out and to give Dave lots of fresh air too!!
Nothing like an early morning trip to A&E on a Sunday morning! Yesterday we noticed a very large hard protruding vein in Dave's left arm. He said he had noticed pain in that arm a couple of weeks ago but because of everything else we didn't follow through on it. Then yesterday it was quite hard. I awoke this morning and thought nah need to get this checked out as I was concerned it could affect his heart being a clot or something like that. I phoned and spoke to a Nurse and explained it all to her. She advised us to go and see a doctor straight away! So a couple of hours later we are now back home after being checked out by a Emergency doctor. They did an ultrasound on Dave's arm and said that it was in relation to the cannulas that have been inserted the past two times during chemo... that this is not uncommon to happen and its nothing to worry about at this stage. However if Dave's arm starts to hurt, swell up and turn blue... before dropping off to get it immediately checked out again!!!
Now we can relax, nap and watch a movie or two in the media room!!! Before an early start tomorrow... having to see the specialist at 9.00am... so have to be out the door at 8.00am.
Only one more week of radiotherapy to go.... yahooo!!!! Then its time to recover and heal.
My weekly verse from You Are my "Once in a Lifetime" by Marci
Love to you all, till next week xxx
Ooops I spoke too soon!!!! Friday morning bam the nausea hit him... in fact he spent most of the morning vomiting and dry reaching!!! Awful!! We think he might have had a reaction to the Ordine - Morphine, as he was ok up until taking this. I phoned the hospital and spoke to the Nurse as I wanted Dave to see the specialist again. I was concerned that he hadn't gotten any fluids into him all morning! We got a specialist appointment at 2.30pm which was great. Took him straight through to the triage area where he could lay down. They took full bloods, and obs... all were great thankfully. As he was dehydrated they hooked him up to an IV drip and gave him maxolon (nausea med) via the drip too. The Maxalon seemed to help a lot as did hydrating him. The Specialist also gave us new scripts for Fentanyl patches and Maxolon ampoules. Thanks to the great advice from our pharmacist.
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The only thing happy about this pic is Dave's socks!!! surprisingly, they are called Happy Socks! |
Oh and yes Dave managed to purchase our Bruce Springsteen tickets too!!!! So excited to be seeing 'the Boss' live!!
Saturday Dave was feeling better again, but still only getting slow fluids in via the PEG. Which worries me as I don't think he's getting enough throughout the day/night!!! But who am I to argue with the patient!!! As Dave says he can only administer what he can handle. I realise this, but still worries me that he's not getting enough.
As I was awake at the crack of dawn Saturday morning I decided I would join my walking group for a walk as it was such a stunning morning. I made sure that Dave was comfortable, administered his drugs and topped up his feeding bag. Dave all settled and back off to sleep... off I went. It was really lovely to get out in the fresh air for a power walk and catch up with everyone... great medicine for me!! Then after coffee I returned to my gorgeous hubby, checked all was ok then I got stuck into cleaning our home top to bottom!!! Must be Spring!! Great way to exercise!!! And such a lovely feeling to sit back on Saturday night knowing its all done, that it smells nice and clean. As it was such a great day I had all the windows and doors open to air the house out and to give Dave lots of fresh air too!!
Nothing like an early morning trip to A&E on a Sunday morning! Yesterday we noticed a very large hard protruding vein in Dave's left arm. He said he had noticed pain in that arm a couple of weeks ago but because of everything else we didn't follow through on it. Then yesterday it was quite hard. I awoke this morning and thought nah need to get this checked out as I was concerned it could affect his heart being a clot or something like that. I phoned and spoke to a Nurse and explained it all to her. She advised us to go and see a doctor straight away! So a couple of hours later we are now back home after being checked out by a Emergency doctor. They did an ultrasound on Dave's arm and said that it was in relation to the cannulas that have been inserted the past two times during chemo... that this is not uncommon to happen and its nothing to worry about at this stage. However if Dave's arm starts to hurt, swell up and turn blue... before dropping off to get it immediately checked out again!!!
Now we can relax, nap and watch a movie or two in the media room!!! Before an early start tomorrow... having to see the specialist at 9.00am... so have to be out the door at 8.00am.
Only one more week of radiotherapy to go.... yahooo!!!! Then its time to recover and heal.
My weekly verse from You Are my "Once in a Lifetime" by Marci
From the Moment We Met I knew We Were Soul Mates
That first moment when we met is etched in my heart forever.
There was that sense that I have known you for a long time
and that our relationship was meant to be.
You have been there with me through the ups and downs,
reminding me each day of why I love you.
It is because of you that I know the bonds
we form are as everlasting as the spirit.
Love to you all, till next week xxx